Four and a Half Hours
A last-minute appointment change, and the transportation, work, care, and coordination that move with it.
Archive
How A Voice Takes Shape
Six pieces revisit early poems, classroom experiences, family, and the beginnings of Wiley’s Walk.
Cerebral Palsy in Adulthood: Six Essays
Six essays on cerebral palsy in adulthood, including movement, adaptation, medical care, and changes over time.
Revisiting Change, Adaptation, and What Comes Next
Five essays on change, adaptation, routines, and what happens when familiar approaches no longer fit.
The Expanded Inclusion Collection
Thirteen essays on disability inclusion, access, participation, assumptions, and belonging.
The Ulnar Nerve Series: Surgery, Recovery, and the Questions That Followed
Seven essays follow ulnar nerve surgery, changes in hand function, and the questions that continued during recovery.
Access in the Age of Artificial Intelligence
Artificial intelligence (AI) is now part of many of the digital services people use. People may encounter it while using a website or another online service without knowing exactly where AI is involved.
Somewhere Between Summer and Fall
Twenty-five September mornings have come and gone since a clear blue sky became part of our collective memory. This is for the people who were lost, the people who ran toward danger, and the people who reached for one another.
Cerebral Palsy Is Lifelong. Is the Care?
Cerebral palsy across the lifespan, the transition out of pediatric care, and the need for knowledgeable adult medical care.
Overshadowed
After ulnar nerve surgery, my left hand did not return to the level of function it had before. Tasks that had once been manageable began to require more effort, and some became difficult in ways that were new.