The Space Between Motion and Stillness


Movement is neither effortless nor certain. Spastic CP is a neurological condition that disrupts the signals between brain and muscle, creating stiffness, rigidity, and involuntary contractions. Movement becomes a negotiation, each step a conversation between intention and limitation.

The hamstrings tighten too soon, bracing for movement that has not yet begun. Knees hesitate, caught between stiffness and release—never fully straight, never fully bent.

Tension settles deep, winding through the backs of my legs, twisting into the hamstrings like a knot that will not come undone. A knee locks mid-step. Feet drag. Movements jerk. The body does not resist in defiance. It resists because release is not the same as control.

In the sterile quiet of a Doctor’s office, hands press into tendons, measuring, stretching, noting. I become a case. A treatment plan emerges: four injections per leg. Four months of silenced nerves. Spasticity gone? Maybe. Maybe not.

The needle presses in. The machine crackles with static, a hum caught between white noise and electricity. They call it spasticity, the misfiring nerves made audible. Each pulse of current sends muscles flaring, twitching, resisting. Then the injection.

Cold spreads deep. The hamstrings should loosen within hours. The knees, caught between tightness and release, should find a middle ground. Yet expectation does not always match reality.

Sometimes, the body resists less. Other times, it does not resist at all. A knee that once held firm buckles. A leg that once pulled tight gives way. Muscles do not just relax. They let go. What was once certain is now unsteady. Steps falter, strain, slip.

I wait for the return of tightness, rigidity, movement—but it does not come. Nine months pass. It becomes necessary to relearn movement in the absence of what was once familiar. To wait for sensations, though no one can say if feeling will return.

Waiting is not a pause. It is a stretch of time, filling space, forcing adaptation. Movement is more than motion—it is expectation, rhythm, trust in the body’s response. The poem below explores what happens when that rhythm breaks.

Between Stasis and Step — The Poem

By Kerry Ann Wiley

Waiting is not empty.
It takes shape, fills space,
lingers in what was.

No before. No after.
Only time stretched thin,
where a step is no longer certainty
but a question.

Somewhere between resistance and surrender,
this is not stillness,
but something close.

The night does not break.
It takes.
It presses in, quiet and full,
heavy with what was,
what wasn’t,
what never found its way to words.

Movement is not gone.
It lingers,
threaded through what remains,
folded into absence.

Footsteps vanish into rain.
Breath unwinds into dark.
Nothing moves except time,
slow, indifferent,
dragging what remains through the cold.

Even beneath the surface, something lifts.
Even the lost hear the pull of their name.
Even now,
wind, tide, shifting sky
trace something just beyond the edges.

Not mercy.
Not promise.
Not yet.

But somewhere, still,
a thread, a spark,
a hunger that refuses to close its hands.

And that will be enough,
until enough becomes more.


Recovery and the Space Between

Botox cannot erase years of tension. It interrupts it. It creates a space where movement might return—if the balance is right. If the dosage is precise. If the body adapts as expected.

Expectation is not certainty. The risk of Botox is not just whether the injections will work. It is trust. Relinquishing control to an unseen drug, measured in units and vials. Balanced on guesses and adjustments.

After treatment, the body waits. It lingers between hope and hesitation, between relief and uncertainty. Sensation shifts. Muscles quiet. Yet the question remains: What will settle? What will return? What will be lost?

When the body does not respond as it should, when waiting stretches from weeks into months, adaptation becomes something else. The absence of movement becomes its own weight, its own kind of resistance.

This is what nine months of recovery feels like. Time slows, dragging everything with it. Each day feels like a breath held too long, a hesitation stretched past its breaking point. Recovery does not feel like progress. It feels like grasping for a threshold that has dissolved.

Until movement, hesitant but returning, becomes its own momentum once more. It lingers in muscle memory, in the quiet rhythm of balance—waiting to return.


Poem Analysis

The poem opens with the assertion that waiting is not passive—it takes up space. Even in stillness, something remains: sensations, the imprint of movement that once was.

The line “No before. No after.” disrupts linear time. Recovery exists in limbo, where movement is no longer a guarantee but a question.

“Somewhere between resistance and surrender,” speaks to the tension of uncertainty. The body does not fully move, but it does not fully stop. It lingers.

“The night does not break. It takes.” Darkness becomes a metaphor for loss, absence pressing in. The inability to move is not just physical—it is emotional. The weight of unspoken experiences fills the silence.

“Movement is not gone.” Here, the poem shifts. While motion is absent in the present, it still exists in memory, in the subconscious patterns the body once knew.

“Footsteps vanish into rain.” This deepens the contrast between motion and stillness. Steps dissolve into something intangible, leaving only time—dragging everything forward, indifferent.

“Even beneath the surface, something lifts.” This is the first sign of hope. Though movement is lost, something stirs—perhaps muscle memory, will, or something deeper than physical ability. Even in uncertainty, there is a pull toward motion.

“Not mercy. Not promise. Not yet.” There is no certainty of recovery. The waiting is neither a gift nor an assurance. It simply is.

Even in limitation, something lingers—a refusal to close one’s hands around absence. Even in uncertainty, there is a thread, a spark, a pull that does not let go.


Closing Thoughts

Movement is more than motion—it is certainty, rhythm, trust. When that trust falters, what remains is harder to define. The space between stillness and motion is not empty. It holds tension, uncertainty, the persistence of what once was.

Between Stasis and Step explores this in-between, where the body lingers but does not move with ease. Waiting is not passive; it is something tangible. It carries the weight of absence, the slow drag of time, and the quiet pull of hope that refuses to be extinguished.

Recovery is not linear. It moves in fragments, shaped by tension and release. The body does not simply let go—it recalibrates, searching for balance where none exists. Muscles, once rigid, loosen beyond expectation. Stability shifts. A step that once held firm wavers.

Stillness is not the absence of motion. It carries its own weight, its own kind of resistance. The muscles quiet, but tension lingers. Expectation wavers. Time stretches.

In that stretch of waiting, something stirs. Movement shifts at the edges, unsteady but present. It lingers—until, finally, it returns.

Edges Unseen: The Photo and the Spoon


The drawer opens. A hand searches as it did years ago, when a photograph rested at the edge of a mirror. Always there, until one day, it wasn’t. It must have slipped, fallen behind the dresser, or perhaps ended up in a forgotten box. At first, its absence went unnoticed. Only later, when fingers reached for it, did something feel amiss. A second search, slower this time. Still nothing. There are others. Another photograph will do. Yet, something lingers.

The Weight of What Isn’t There

Some things quietly fade—a name, a photograph, a voice once close, now distant. Many absences go unnoticed. A hand reaches for what was, only to find the space it once filled.

It is not just the spoon that once stirred coffee, now gone. Like the photograph, once resting at the edge of the mirror, always in place—until it slips away.

Some losses arrive sharp and sudden: a farewell at the door, a train pulling away, an empty chair at the table. These absences have names and carry rituals, final goodbyes that echo long after they have passed. Some moments linger long after they’ve gone. The reminders stay, hard to forget.

Others slip away unnoticed, their absence felt only later No sound, no final touch—just a gradual unraveling. A childhood home, now in someone else’s care, its floors creaking under unfamiliar steps.

A friendship, once vibrant, now stretches thin. It fades like a photograph left in the sun too long, its edges curling until it’s no longer recognizable. The moment of change is elusive—hard to pinpoint, yet undeniable: one day, it’s simply gone.

What the Silence Holds

The missing object carries echoes of a life once lived, its absence a quiet reminder of what’s no longer there. A spoon that once clinked against a coffee mug in the quiet of morning, stirred soup as conversation filled the air, and rested between hands during late-night confessions.

It isn’t about the spoon. It never was. The drawer closes, and a fork is taken instead—a quiet substitution, but it never fills the same space. The rhythm of the day continues, steady and unchanged.

For a moment, something lingers—not in the absence itself, but in the memory of what once was. The weight of the photograph once resting at the edge of the mirror, the spoon that stirred more than just coffee, the quiet comfort of what had always been there.

It cannot be fixed, only felt—the echo of what once was, still present.

The Future of Access: What’s at Stake for Section 504


The framework of access is rarely dismantled all at once. More often, it shifts in ways that go unnoticed—until the supports many rely on are no longer guaranteed. That is the conversation unfolding around Section 504 of the Rehabilitation Act, a law that has shaped disability rights for over 50 years. Seventeen states are challenging recent updates, raising the question: What happens if the foundation of access is weakened?

What Is Section 504?

Section 504 of the Rehabilitation Act of 1973 was a landmark law that prohibited discrimination based on disability (National Education Association, 2019).

It laid the groundwork for later legislation, including the Americans with Disabilities Act (ADA). Unlike the ADA, which applies broadly to both public and private entities, Section 504 specifically protects individuals in programs and services that receive federal funding. This includes public schools, universities, hospitals, and government agencies.

It also applies to employers with federal contracts. These protections ensure that individuals with disabilities are not discriminated against in these federally supported settings (National Education Association, 2019; U.S. Department of Health and Human Services, n.d.).

At its core, Section 504 ensures that people with disabilities have equal access to education, employment, and healthcare (National Education Association, 2019; U.S. Department of Health and Human Services, n.d.). It prohibits policies and practices that exclude or limit participation (U.S. Department of Education, n.d.). The law also requires reasonable accommodations to remove barriers (National Education Association, 2019).

These protections did not come easily. Disability advocates fought for years to secure Section 504 regulations. Their efforts culminated in the 504 Sit-in of 1977, one of the longest federal building occupations in United States history. Activists, including Judy Heumann, pressured the government to issue enforcement regulations, which solidified the law’s impact.

For many, Section 504 is more than legal text. It is the reason a student receives necessary support in school. It allows a patient to communicate clearly with a doctor (Northeast ADA Center, n.d.). It ensures that an employee can perform their job without unnecessary barriers. This law requires schools to provide accommodations so students with disabilities can learn (U.S. Department of Education, n.d.).

It compels employers to create accessible workplaces. It holds hospitals accountable for offering accessible medical equipment (Northeast ADA Center, n.d.). It also applies to digital spaces (ADA Site Compliance, 2024). Websites and online platforms must be designed so that blind and low-vision users can navigate them with assistive technology (ADA Site Compliance, 2024). Digital accessibility ensures that critical information, communication, and services are available to everyone, regardless of disability.

The Legal Challenge to Section 504

A lawsuit is challenging Section 504 (TER Staff, 2025), arguing that recent updates proposed by the U.S. Department of Education (www.ed.gov) and the U.S. Department of Health and Human Services (www.hhs.gov) impose new and costly obligations on states.

These updates clarify and strengthen existing protections. They reinforce modern accessibility standards and set clearer expectations for how schools, workplaces, and healthcare providers serve individuals with disabilities. Supporters believe these changes protect rights already established by law. Opponents argue that they add financial and administrative burdens.

Seventeen states are behind the lawsuit, claiming the updates expand federal authority too far. If the challenge succeeds, enforcement could weaken, leaving individuals with disabilities with fewer options for recourse (TER Staff, 2025).

The states challenging these updates include Alabama, Alaska, Arkansas, Georgia, Idaho, Iowa, Kansas, Kentucky, Missouri, Nebraska, South Carolina, South Dakota, Tennessee, Texas, Utah, Virginia, and West Virginia (TER Staff, 2025). Their lawsuit could reshape how Section 504 is enforced and interpreted in the years ahead.

Moving Forward: Advocacy and Action

The discussion around Section 504 reaches beyond courtrooms, shaping conversations in communities, workplaces, and organizations across the country. As legal proceedings continue, staying informed helps individuals understand potential changes and their impact.

Government agencies provide valuable updates on this evolving discussion. Checking in with the U.S. Department of Education (https://www.ed.gov/) and the U.S. Department of Health and Human Services (https://www.hhs.gov/) offers insight into proposed revisions. At the state level, residents in the 17 states involved in the lawsuit can reach out to their Attorney General’s office, where public comments are often welcomed.

Keeping others informed also makes a difference. Sharing updates with colleagues, educators, healthcare providers, and disability advocates helps build awareness and prepare for what may come next.

Section 504 was born from advocacy. Its protections remain in place because individuals continue to speak up. The choices made now will determine the strength of these protections in the years ahead.

Access is not static; it shifts as people recognize barriers, revisit policies, and advocate for change. Each effort, whether quiet or bold, contributes to a broader movement. The direction of these conversations will shape the future of inclusion.


References

The Unseen Thaw


The morning carries a sharper chill than expected. Winter’s air stings, crisp and unrelenting. The world lies still beneath its white cover. Snow clings to branches, intricate and crystalline. Yesterday’s hurried footprints are gone.

The night’s snowfall has erased them, leaving no trace. The landscape feels cleansed. Yet, there is an unease in that kind of erasure, a sense of loss that lingers.

A moment of almost—but not yet—readiness: waiting, suspended breath, for something just beyond reach. A single drop falls from a branch, catching the faint morning light. Another follows, then another. The thaw begins. Ice creaks softly, loosening its grip.

The thaw arrives whether it is welcomed or not. Readiness does not delay it. It arrives unbidden—just as it always does. This moment, the quiet dissolving of certainty, feels familiar. The buried thought, the echo of a conversation, the grip on an old belief: each loosens its hold. Even winter cannot hold on forever.


The Unseen Thaw — A Poem

By Kerry Ann Wiley

The thaw arrives, unseen, unasked,
melting the once-unyielding past.
A stillness untangles what has hardened within,
a whisper in the quiet light.

Diamonds weep from bending trees,
as beauty trembles, caught between
the weight of loss and the hope unseen.

Each frozen word, each silenced plea,
encased in frost, they linger, still,
vanished footprints the snow does fill.

Yet within the quiet, a stirring sigh
weaves through the hollows where memories lie.
Not all that fades is truly gone;
some things endure, some move on.
Not all that vanishes is lost.
Not all that remains is real.

What melts, what lingers, what slips away,
the thaw unravels what was before,
revealing truths that lie at its core.


The Unraveling

There is something unsettling about the thaw.

It is simple to prepare for the storm, to brace against the cold. There is a certain comfort in anticipating the challenge ahead. No one teaches how to get ready for the thaw—how to let go, how to release what was once solid. The undoing does not break but bends. It does not strike; it erodes, steady and unspoken.

The poem lingers in that delicate space. Yet the thaw is more than just a moment—it is a force, shifting beneath our lives in ways both seen and unseen. When the thaw begins, it takes what once felt certain. Frozen footprints disappear. Sharp edges blur. Delicate patterns melt away.

There is beauty in the breaking. Before something is lost entirely, it lingers, fragile, shimmering, holding on for just a moment. The space between presence and absence, between what was and what is to come, is where The Unseen Thaw finds its meaning.

“Not all that vanishes is lost. Not all that remains is real.”

These words hover, asking:

Is it the holding on that gives something its weight?

Or is it the letting go that sets it free?

Everyone has stood here. Watching as something they thought would last begins to fade: a relationship, a phase of life, an unspoken certainty. The thaw reaches them all, in different ways. Each time… it comes as both an ending and a beginning.

As the ice melts, the weight lifts, and the air feels lighter. What emerges next is uncertain.

What is Left Behind

Certain feelings defy easy expression. The Unseen Thaw captures the fleeting moment when something begins to dissolve. It lingers in the space between holding on and letting go.

The opening lines remind us that change arrives unbidden:

“The thaw arrives, unseen, unasked, / melting the once-unyielding past.”

Control is an illusion. The thaw is inevitable, moving silently through our lives, dismantling what we thought would last.

In the second stanza, “diamonds weep from bending trees” evokes both beauty and sorrow. More than a description of melting ice, it speaks to the grace in endings—the way release can be both painful and exquisite. There is no resistance to the thaw. It simply happens.

Regret weaves through the lines:

“Each frozen word, each silenced plea, / encased in frost, they linger, still.”

The words never said, the opportunities left untouched—they remain, frozen. Until the thaw. It forces them to the surface, briefly… before they slip away. The thaw does not just take; it reveals. The shift is soft.

The fourth stanza introduces a whisper, a forgotten trace, stirring beneath the surface. The thaw is not just an ending; it also uncovers what lies beneath, waiting to be noticed.

Finally, the poem’s closing lines reflect on impermanence:

“What melts, what lingers, what slips away, / the thaw unravels what was before.”

These questions invite reflection. What truly endures? What was never really there at all? The thaw does not merely dissolve; it illuminates, revealing both what has been and what still lies ahead.

The Space Between

Letting go is a gradual shift, a subtle release, a quiet easing. Sometimes it feels like relief; other times, it is wrenching. More often, it is both. The thaw does not erase what came before. It reveals what remains.

The thaw is neither sudden nor merciful. It does not wait. It moves in silence, undoing the edges of certainty. Footprints fade. Ice weakens. What seemed immutable gives way—not all at once, but in pieces, in moments, in the slow surrender of what no longer holds.

There is no clear line between what remains and what changes, only the quiet space between them. Not all that disappears is gone. Not all that softens is broken. The thaw carries both release and renewal, making way for what comes next, even if it is not yet visible. Perhaps the weight is not in what is left behind, but in the waiting. In the moment before something new takes shape.

The Pause Before Dawn


There are moments when life shifts, but the direction remains unclear. A door closes, but another hasn’t opened. A decision is made, but the outcome lingers. That space—where one chapter ends and another waits—is where Between Darkness and Light lingers.

This poem doesn’t just describe the moment before dawn. It captures the feeling of standing on the edge of something new, unsure whether to step forward or hold on to what was.


Between Darkness and Light
The Poem
By: Kerry Ann Wiley

The sky unravels in whispers of gold,
a hush that bends where shadows fold.
Silent, it climbs,
spilling warmth through the night’s last flinch.
A blade of fire parts the deep,
carving the hush where secrets sleep.

Is this birth, or is it decay—
another chance, or time slipping away?

The dark retreats but never dies,
Shadows do not run; they listen,
folding themselves into the seams of light.

And here we stand—
not divided, not whole,
but something unnamed in between.

The dark steps back but does not break,
a quiet pulse beneath the wake.
A hush where echoes hesitate,
neither lost nor returning.

The space between motion,
the weight of a step never taken,
unfinished, but present—
not waiting, only watching.

Trace the seam, shape the gray—
not meant to leave, nor meant to stay.

The Uncertainty of Change

Change rarely unfolds as neatly as it’s imagined. In hindsight, it is often easy to see how one thing ends and another begins. In the moment, however, change is slow, uncertain, and often unclear. It is in the spaces between these shifts, the gaps, where uncertainty lingers.

The poem begins with the sky unraveling in whispers of gold. The light doesn’t rush in; it arrives slowly, almost cautiously. This mirrors the way transitions often feel. They don’t occur all at once. Instead, pieces shift, moments pass, and only later does something new become clear.

Then comes the lingering question:

Is this birth, or is it decay—
another chance, or time slipping away?

At times, change feels like a fresh start; other times, it feels like something slipping out of reach. Often, it is a combination of both. The poem doesn’t offer an answer to this; instead, it simply acknowledges that transformation is rarely simple.

What Stays, What Fades

Change isn’t just about what’s coming; it’s just as much about what remains.

The dark retreats but never dies.

The past doesn’t vanish when something new begins. Shadows don’t run away; they listen, folding into the light and becoming part of it.

This line suggests that the past isn’t erased when change happens. Instead, it remains present, subtly shaping the future. The metaphor of shadows not fleeing, but listening, shows that the past doesn’t vanish—it lingers, adapting with the new.

Shadows folding into the light represent how memories and past experiences don’t disappear; they become part of the present, quietly influencing the future. It acknowledges that the past, though it may shift, continues to exist alongside the new, contributing to the ongoing process of change.

Memories work similarly. The things that came before don’t simply disappear. Some fade over time, while others settle into the present, quietly influencing the future.

The poem captures this tension: moving forward while still carrying pieces of what was.

The Weight of the Unfinished

Near the end of the poem, it lingers on a poignant idea:

The weight of a step never taken.

There is a subtle weight to the things that almost happen: the choices not made, the words left unsaid, the paths unexplored. Even what doesn’t happen still leaves its mark.

That’s why change often feels unsettling. It is not just about what is coming next, but also about what’s being left behind. The uncertainty lies not only in what’s ahead, but in what could have been.

Letting Change Be What It Is

The poem ends with quiet recognition:

Trace the seam, shape the gray—
not meant to leave, nor meant to stay.

Some moments exist simply to be noticed, felt, and understood. Change is not always a clear ending or a definitive beginning. It often lives in the pause before a choice is made, the hesitation before a step forward. It is found in the moment when light and shadow coexist.

Between Darkness and Light embraces the uncertainty that comes with transition. Not every shift needs to be named. Not every change requires understanding. Some moments are meant to be lived, not defined. Eventually, they simply become part of what comes next.